The Relationship Satisfaction of Parents to Children With Congenital Heart Disease

Anni Riikonen, Anna Liisa Aho, Anja Rantanen

Abstract


The purpose of the research is to describe the marital satisfaction of parents with a child with congenital heart disease, and the factors associated with it. The data were collected using an electronic questionnaire from applicable parents (n = 104) via the website of the Finnish Association for Heart Children and Adults and a closed Facebook forum where such parents are members. Marital satisfaction was measured using the ENRICH Marital Satisfaction (EMS) scale. The data were analysed using statistical methods. The variables were described by frequencies, percentages, and dispersion measures (Md = median, Q1= lower quartile, Q3 = upper quartile). Associations between the background variables and relationship satisfaction were examined using Mann-Whitney U test and Kruskall-Wallis test. Most of the surveyed parents were quite satisfied with their relationships. Parental factors associated with marital satisfaction were the gender of the parent, current health situation, support received from the spouse, problems with the spouse, and remarkable changes in economic situation during last year. The age of the child with a congenital heart disease was a factor associated with marital satisfaction. The interaction skills of the parents must continue to be supported and strengthened, because good interpersonal skills increase marital satisfaction and help resolve the conflicts that may arise in a relationship.

Keywords


child with a congenital heart disease; parents; marital satisfaction

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References


Burns N. & Grove S. K. (2005). The practice of nursing research. Conduct, critique & utilization. Elsevier Saunders, Missouri.

Dale M., Solberg Ø., Holmstrøm H., Landolt M., Eskedal L. & Vollrath M. (2013). Relationship satisfaction among mothers of children with congenital heart defects: A prospective case-cohort study. Journal of Pediatric Psychology 38(8), 915–926. DOI: 10.1093/jpepsy/jst038

Dyrdal G. M., Røysamb E., Nes R. B. & Vittersø J. (2011). Can a happy relationship predict a happy life? A population-based study of maternal well-being during the life transition of pregnancy, infancy, and toddlerhood. Journal of Happiness Studies 12(6), 947–962. DOI: 10.1007/s10902-010-9238-2

Fowers B. J. & Olson D. H. (1993). ENRICH Marital Satisfaction Scale: A brief research and clinical tool. Journal of Family Psychology 7(2), 176–185. DOI: 10.1037/0893-3200.7.2.176

Fowers B. J., Applegate B., Olson D. H. & Pomerantz B. (1994). Marital conventionalization as a measure of marital satisfaction: A confirmatory factor analysis. Journal of Family Psychology 8(1), 98–103. DOI: 10.1037/0893-3200.8.1.98

Goldbeck L. & Melches J. (2006). The impact of the severity of disease and social disadvantage on quality of life in families with congenital cardiac disease. Cardiology in the Young 16(1), 67–75. DOI: 10.1017/S1047951105002118

Kaarne M., Jokinen E., Pesonen E. & Leijala M. (2008). Lasten synnynnäiset sydänviat (Congenital heart defects in children). In Heikkilä J., Kupari M., Airaksinen J., Huikuri H., Nieminen M. & Peuhkurinen K. (Eds.) Kardiologia (Cardiology). Duodecim Medical Publications Ltd, Helsinki, 970–1013.

Karsdorp P. A., Everaerd W., Kindt M. & Mulder B. J. M. (2007). Psychological and cognitive functioning in children and adolescents with congenital heart disease: a meta-analysis. Journal of Pediatric Psychology 32(5), 527–541. DOI: 10.1093/jpepsy/jsl047

Kiiski J. (2011). Suomalainen avioero 2000-luvun alussa. Miksi avioliitto puretaan, miten ero koetaan ja miten siitä selviydytään? (The Finnish divorce in the early 2000s. Why are marriages dissolved? How is divorce perceived? How to cope with divorce?) Doctoral Dissertation. University of Eastern Finland, Kuopio.

Kontula O. (2009). Parisuhdeonnen avaimet ja esteet. Perhebarometri 2009 (Keys and obstacles of happiness in couple relationships. Family barometer 2009). Väestöntutkimuslaitoksen katsauksia E38 (Publications of the Population Research Institute E38). Population Research Institute, Helsinki.

Kontula O. (2013). Yhdessä vai erikseen? Tutkimus suomalaisten parisuhteiden vahvuuksista, ristiriidoista ja erojen syistä. Perhebarometri 2013 (Together or apart? A study on strengths, conflicts, and causes of separation in Finnish couple relationships. Family barometer 2013). Väestöntutkimuslaitoksen katsauksia E47. (Publications of the Population Research Institute E47). Population Research Institute, Helsinki.

Lawoko S. & Soares JJF. (2002). Distress and hopelessness among parents of children with congenital heart disease, parents of children with other diseases, and parents of healthy children. Journal of Psychosomatic Research 52(4), 193–208. DOI: 10.1016/S0022-3999(02)00301-X

Lawoko S, Soares JJF. (2003). Quality of life among parents of children with congenital heart disease, parents of children with other diseases and parents of healthy children. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care & Rehabilitation 12(6), 655–666. DOI: 10.1023/A:1025114331419

Lawoko S. (2007). Factors influencing satisfaction and well-being among parents of congenital heart disease children: development of a conceptual model based on the literature review. Scandinavian Journal of Caring Sciences 21(1), 106–117. DOI: 10.1111/j.1471-6712.2007.00444.x

Lawrence E., Rothman A. D., Cobb R. J., Rothman M. T. & Bradbury T. N. (2008). Marital satisfaction across the transition to parenthood. Journal of Family Psychology 22(1), 41–50. DOI: 10.1037/0893-3200.22.1.41

Malinen K. (2011). Parisuhde pikkulapsiperheessä. (Spousal relationship in families with young children.) Doctoral Dissertation. University of Jyväskylä, Jyväskylä.

Murphy N. A., Christian B., Caplin D. A. & Young P. C. (2007). The health of caregivers for children with disabilities: caregiver perspectives. Child: Care, Health and Development 33(2), 180–187. DOI: 10.1111/j.1365-2214.2006.00644.x

Paajanen P. (2003). Parisuhde koetuksella. Käsityksiä parisuhteesta ja sen purkautumisesta. Perhebarometri 2003 (Relationships under strain. Perceptions of relationships and their dissolution. Family barometer 2003). Väestöntutkimuslaitoksen katsauksia E17 (Publications of the Population Research Institute E17). Population Research Institute, Helsinki.

Paajanen P. (2005). Eri teitä vanhemmuuteen - kaksikymppisenä ja kolmekymppisenä lapsen saaneiden näkemyksiä perheellistymisestä ja vanhemmuudesta. Perhebarometri 2005 (Different routes to parenthood – perceptions of 20-something and 30-something parents on starting a family and becoming parents. Family barometer 2005). Väestöntutkimuslaitoksen katsauksia E21 (Publications of the Population Research Institute E21). Population Research Institute, Helsinki.

Paajanen P. (2007). Mikä on minun perheeni? - Suomalaisten käsityksiä perheestä vuosilta 2007 ja 1997. Perhebarometri 2007 (What constitutes a family? – Finns’ perceptions of family in 2007 and in 1997. Family barometer 2007). Väestöntutkimuslaitoksen katsauksia E30 (Publications of the Population Research Institute E30). Population Research Institute, Helsinki.

Polit D. F. & Beck C. T. (2012). Nursing research: generating and assessing evidence for nursing practice. Lippincott Williams & Wilkins, Philadelphia.

Pukkala T. (2006). Millaiset avioliitot kestävät? Pitkässä parisuhteessa eläneiden käsitykset pysyvän avioliiton avaimista (What makes a marriage last? Perceptions of people in long-term relationships on the keys to a lasting marriage). Doctoral dissertation. University of Lapland, Rovaniemi.

Rosen-Grandon J. R., Myers J. E. & Hattie J. A. (2004). The relationship between marital characteristics, marital interaction processes, and marital satisfaction. Journal of Counseling & Development 82(1), 58–68. DOI: 10.1002/j.1556-6678.2004.tb00286.x|

Rovamo L. & Rautiainen P. (2014). Sydänvikaisen vastasyntyneen hoito (Treatment of a newborn with a heart defect). Current Care Guidelines. The Finnish Medical Society Duodecim. http://www.kaypahoito.fi/web/kh/suositukset/suositus;jsessionid=0EB2DBF6559F08F172F8FEC044DD85AE?id=nix02113 [accessed November 25, 2015].

Rychik J., Donaghue D. D., Levy S., Fajardo C., Combs J., Zhang X., Szwast A. & Diamond G. S. (2013). Maternal psychological stress after prenatal diagnosis of congenital heart disease. The Journal of Pediatrics 162(2), 302–307. DOI: 10.1016/j.jpeds.2012.07.023

Salmela-Aro K., Aunola K., Nurmi J., Saisto T. & Halmesmäki E. (2003). Puolisoiden masentuneisuus ja tyytyväisyys parisuhteeseen lapsen syntymän yhteydessä (Depression and relationship satisfaction among spouses while having a newborn). Psykologia 38(3), 167–179.

Salo S. (2011). Parisuhdeongelmat ja lasten psyykkinen hyvinvointi: kaksi tutkimusnäkökulmaa. (Couples conflicts and children’s mental wellbeing: two research approaches). Doctoral Dissertation. University of Jyväskylä, Jyväskylä.

Solberg Ø., Dale M. T. G., Holmstrøm H., Eskedal L. T., Landolt M. A. & Vollrath M. E. (2012). Trajectories of maternal mental health: A prospective study of mothers of infants with congenital heart defects from pregnancy to 36 months postpartum. Journal of Pediatric Psychology 37(6), 687–696. DOI: 10.1093/jpepsy/jss044

Tak Y. R. & McCubbin M. (2002). Family stress, perceived social support and coping following the diagnosis of a child's congenital heart disease. Journal of Advanced Nursing 39(2), 190–198. DOI: 10.1046/j.1365-2648.2002.02259.x

Twenge J. M., Campbell W. K. & Foster C. A. (2003). Parenthood and marital satisfaction: a meta-analytic review. Journal of Marriage and Family 65(3), 574–583. DOI: 10.1111/j.1741-3737.2003.00574.x

Uzark K. & Jones K. (2003). Parenting stress and children with heart disease. Journal of Pediatric Health Care: Official Publication of National Association of Pediatric Nurse Associates & Practitioners 17(4), 163–168. DOI: 10.1067/mph.2003.22

Van Horn M., DeMaso D. R., Gonzalez-Heydrich J. & Dahlmeier Erickson J. (2001). Illness-related concerns of mothers of children with congenital heart disease. Journal of the American Academy of Child & Adolescent Psychiatry 40(7), 847–854. DOI: 10.1097/00004583-200107000-00020




DOI: https://doi.org/10.5964/ijpr.v13i1.325